TSEWA is grateful to all the donors who sent their donations for the treatment of Miss Mahima, the granddaughter of Brig CS Vidyasagar. The FIRST dose was administered to Mahima Sagar by Dr. Ramesh Konanki and Dr. Surabhi on 07 July 2022. A thanking message from Brig CS Vidyasagar along with the video clippings is attached herewith for your information please.
Brig CS Vidyasagar Message:
I am extremely grateful to all of you who stood by our family in our hour darkness to open their hearts and wallets to give us so much money which we never saw in our lives. Links to few photos of this ceremony on 07 Jul 2022 of administering first dose of Risdiplam to Mahima Sagar and two videos in which Drs Ramesh Konanki and Dr. Surabhi pursuing a fellowship in pediatric Neurology who actually administered the wonder drug are shown attached.
- Local Chemist handing over one bottle of Risdiplam to Mahima Sagar to be kept at home in the refrigerator at a temperature between 2 to 8 deg Celsius.
https://photos.app.goo.gl/BQyvcVFWjTGJY7jR6
- Mahima Sagar holding a bottle of Risdiplam
https://photos.app.goo.gl/c3kmLLrfn6sXu7E98
- Two bottles of Risdiplam priced at Rs 30 lakhs including GST both Central Govt and State Govt of Rs 65,000 each.
https://photos.app.goo.gl/3YdnMtYDT84CRtnt8
- Invoice for purchase of two bottles of Risdiplam which lasts just 20 to 24 days only.
https://photos.app.goo.gl/RkuFMjFHqJytEA6cA
- Video of Dr. Ramesh Konanki explaining about drug Risdiplam to Mahima Sagar.Dr. Surabhi administering the drug.
https://photos.app.goo.gl/j5anA8ZrRRuXYPcm6
- Video before Dr. Ramesh and Dr. Surabhi administered drug Risdiplam to Mahima Sagar .
https://photos.app.goo.gl/Z3U86MJXX1AYVTBHA
- Dr. Ramesh Konanki and Dr. Surabhi on completion of administering the first dose to Risdiplam to Mahima Sagar
https://photos.app.goo.gl/e8PLNak8fZNr35r89
Note: The links are in blue / brown colour should open by clicking them. If they do not open, then kindly copy the link and paste it into your computer or smartphone browser and click anywhere in the browser window.
I have no words to thank all of you who helped my family. But for your kindness, this would not have been possible. My family owe eternally a great deal of gratitude to each one of you who turned my resignation of ultimate end of Mahima Sagar in next few years to new lease life to this 11 year old granddaughter of mine who suffered for the last many years due to Spinal Muscular Atrophy.
I now start believing in God that He came in the form my Ex-Servicemen community members to give a new lease of life to Mahima Sagar, my 11 year old granddaughter.
With utmost gratitude forever
Warm Regards,
Brig CS Vidyasagar (Retd)
TSEWA – 140
Land Line No: 040-46016932
Visit TSEWA Web Site: www.tsewa.org
9493191380(Mobile No & WhatsApp)
Email Address: csvidyasagar@gmail.com